Can You Say Myoclonus?

Can you say Myoclonus? Having a bit of an issue with it this evening, and last night trying to fall sleep. It makes me so damn mad, it’s just annoying!  Are you just dying to know what it is? Well here it goes…

Myoclonus refers to a quick, involuntary muscle jerk. For example, hiccups are a form of myoclonus. So are the sudden jerks, or "sleep starts," you may experience just before falling asleep. These forms of myoclonus occur in healthy people and rarely present a problem.

Most often, you hear of myoclonus as a symptom of a nervous system disorder, such as epilepsy, Parkinson’s, Multiple Sclerosis or of a metabolic condition, or as a reaction to a medication.

People with myoclonus often describe the symptoms as "jerks," shakes" or "spasms" that are:

• Sudden
• Brief
• Involuntary
• Shock-like
• Variable in intensity and frequency
• Localized to one part of the body or all over the body
• Sometimes severe enough to interfere with eating, talking or walking

It’s not like this is the first time I have had them, it is just for a longer period of time. I’m sure my husband is tired of hearing “god damnit” come out of my mouth every time my leg jerks. It has just been my right leg as of late, but I remember when I was first showing MS symptoms both legs would do it at night. Nothing like laying in bed trying to fall asleep when out of nowhere you keep getting these electrical shocks and legs jerking uncontrollably. I’m sure I was a sight to behold, just picture…laying on my side trying to drift off and BAM, I now look like a fish (or maybe I should say Mermaid, it sounds sexier) flailing about.

Now,  this evening all kicked back in my recliner, my right leg apparently has a mind of it’s own, or is it that my mind has a lesion of it’s own? Pretty sure it is the latter of the two, I just love all the little misfiring’s going on in my brain, makes for an adventurous life. (Said with so much sarcasm)

New Love

Laying face down on the table, he strapped my ankles down and began to swivel the lower half of my body slowly from side to side, stretching and loosening me up. He made his way all the way up my back to my neck, being gentle but yet demanding with every touch. Then we moved to the chair where he moved my head and neck in ways that brought such sweet relief……….

 

I love my new chiropractor

 

This man is WONDERFUL, I haven’t felt this good in years!

 

Dr. Mark Lindholm, go check him out-

Waiting…

Went to disability court today.  They put us in a conference like room with the Judge sitting up high like in a usual court room and then there was an eight foot table running perpendicular to the Judge where we sat.  The only people allowed in the room was the Judge, the court reporter, the attorney , Jeff and I. Oh and the guy that sits on the other end of the speaker phone listening until he is asked if I am capable of doing the jobs I have done in the past, and if not, is there any jobs that I can do?  The Judge rambled on at the beginning and then he proceeded to ask me questions about my daily activities, what causes me pain, what helps, what I can and can not do. The attorney then asked me some questions, then the Judge questioned the attorney and then he questioned Jeff and FINALLY he spoke to the guy on the phone to wrap it all up.

 

Before being dismissed, he complimented my attorney on being so helpful and organized and he wished all attorneys were like that. After we left the room she told us that she thought it went good. Now we just wait…..

Snap, Crackle, Pop to Court

 

Today I took a four hour nap and boy did it ever make me feel better, tired wise anyway. Of course my back still hurts. I have an appointment with a chiropractor tomorrow. Sure would be nice if it helped. I’m sure it’s going to hurt like hell while he’s working on me, since the lightest touch in certain places sends me through the roof. I have tried everything to help the pain in my lower back and SI joints. I have had several injections, and have even gone as far as having the nerves burnt in my SI joints, too bad that didn’t work. I guess the best way to describe the nerve burning is, they MS me, lol. It was supposed to break the connection from my SI to my brain. Here I’m trying to to fight against this stupid MS and I go and MS my ass, lol.

Another huge event going on tomorrow is Disability court! I’m nervous, mainly because I know when the judge asks me questions that I will have to really think about some of my answers because I tend not to remember things. We have to go to Valparaiso for court which is about an hour and a half way. I’m sure that will only add to my pain. What’s bad is I don’t want to take a pain pill because it knocks me out and causes me to be sooo far out there. Well maybe I should take it just so that the judge can see what happens to me on a daily basis from taking my pain meds. I don’t know, I just hope it all goes in my favor.

 

WalkMS:2012

It’s that time of year for me to start hitting you up, ok, begging everyone I know for donations. I’m sure you all are tired of hearing all about my MS and the aches and pains that go with it, but I really have to say that as much as you are tired of hearing about it, I’m 100 times more tired of dealing with it day in and day out. The only way to shut me up is to help find a cure for it, and the only way they can do that is with your help..YOUR MONEY!!!! I don’t care if it’s $1.00 or $100, well, I would prefer the latter of the two. All kidding aside, EVERY little bit helps towards a cure.

Unlike last year, I will be joining  WalkMS:Michiana on the IUSB campus on May 5, 2012. Registration and check in begins at 7:30am with the race kicking off at 9:00am. Last year we missed the Michiana walk and went to the walk in Highland Park instead. It was a good day. They had a DJ, clowns, and they fed us afterwards, which was nice.

This year I have designed Team Laws shirts($25). If you would like to purchase one to help our team look more unified that would be great, but by no means feel obligated to have one to walk with us. If you would like to walk, you need to register under Team Laws.  It cost nothing to walk and you don’t have to raise money to walk either, although it would be fabulous if you did.

If any of you know of a business that would be happy to help out, I have Shoe Pin Ups that they can use for customer donations or if they would like to make a business donation , that would be very much appreciated as well.

Again, I am begging for whatever you can give, PLEASE, PLEASE, PLEASE dig deep and find it in your heart to help find a cure for Multiple Sclerosis!!!!!